http://www.netwellness.org/healthtopics/cysticfibrosis/ Latest NetWellness content for Cystic Fibrosis en-us Copyright 2007 NetWellness.org Sat, 20 Mar 2010 03:12:12 PST http://www.netwellness.org/images/logo/nwlogosmall.gif http://www.netwellness.org/healthtopics/cysticfibrosis/ <b>Question</b>: my son has had respiratory problems since he was 6months old addmitted to hospital several times he also suffers with greesy bowel movements bloated tummy and upset tummy on a regular basis and poor growth he had the sweat test when he was 2 years old which came back negative he has also been tested . . .<p><b>Answer</b>: <meta http-equiv="Content-Type" content="text/html; charset=utf-8"><meta name="ProgId" content="Word.Document"><meta name="Generator" content="Microsoft Word 11"><meta name="Originator" content="Microsoft Word 11"><link rel="File-List" href="file:///C:%5CDOCUME%7E1%5Ckkleman%5CLOCALS%7E1%5CTemp%5Cms . . .<p><b>Ask an Expert</b>: Karen McCoy MD, Cystic Fibrosis http://www.netwellness.org/question.cfm/77939.htm Karen McCoy MD Wed, 10 Mar 2010 05:03:00 EST http://www.netwellness.org/question.cfm/77939.htm <b>Question</b>: I have had chronic sinutitis for a number of hears. Thick sputumm, 3 sinus surgies, each getting worse. After I eat usually cough a thick secretions and salty tastes. <p></p> <p></p> <p></p> <p> </p> <p><b>Answer</b>: <p>We do occasionally see adults diagnosed with CF, and some even later than 40 years old. Usually (though not always) these people have had some degree of problems for much of their life, though usually much milder than those with "classic" CF. <o:p> </o:p></p> <p>If you have not raised this quest . . .<p><b>Ask an Expert</b>: John Heintz MD, Cystic Fibrosis http://www.netwellness.org/question.cfm/77775.htm John Heintz MD Sat, 27 Feb 2010 02:02:00 EST http://www.netwellness.org/question.cfm/77775.htm <b>Question</b>: I hope to be seventy nine April 9th. I`d like to know how many people, like myself, are over the age of seventy? <p> </p> <p><b>Answer</b>: <meta http-equiv="Content-Type" content="text/html; charset=utf-8"><meta name="ProgId" content="Word.Document"><meta name="Generator" content="Microsoft Word 11"><meta name="Originator" content="Microsoft Word 11"><link rel="File-List" href="file:///C:%5CDOCUME%7E1%5Ckkleman%5CLOCALS%7E1%5CTemp%5Cms . . .<p><b>Ask an Expert</b>: Brenda Clark MPH, MA, Cystic Fibrosis http://www.netwellness.org/question.cfm/77769.htm Brenda Clark MPH, MA Fri, 26 Feb 2010 09:02:00 EST http://www.netwellness.org/question.cfm/77769.htm <b>Question</b>: I have had fatigue for eight years after a long bout with bronchitis. Since then, I received contradictory and inconclusive diagnoses. I noticed more and more mucus/fluids in my nose and ear canals since and have a constant feeling a having something stuck in my throat, which is hard to cough out an . . .<p><b>Answer</b>: <p class="MsoNormal" style="margin: 0in 0in 0pt"><font face="Times New Roman" size="3">Your symptoms are not specific for cystic fibrosis and could describe a wide variety of respiratory processes. </font></p> <p class="MsoNormal" style="margin: 0in 0in 0pt"><?xml:namespace prefix = "o" ns = "urn:s . . .<p><b>Ask an Expert</b>: Patricia Joseph MS, MD, Cystic Fibrosis http://www.netwellness.org/question.cfm/77537.htm Patricia Joseph MS, MD Fri, 12 Feb 2010 15:02:00 EST http://www.netwellness.org/question.cfm/77537.htm <b>Question</b>: My niece has CF, I am 40. I had double pneumonia dec. 2009, they tell me that it is all gone. I have stabbing pain in my lung area, both sides, shortness of breath, especially when I move around, I cough, sometimes i feel like I need to cough to catch my breath, sometimes I cough so hard I throw up. . . .<p><b>Answer</b>: <meta http-equiv="Content-Type" content="text/html; charset=utf-8"><meta name="ProgId" content="Word.Document"><meta name="Generator" content="Microsoft Word 11"><meta name="Originator" content="Microsoft Word 11"><link rel="File-List" href="file:///C:%5CDOCUME%7E1%5Ckkleman%5CLOCALS%7E1%5CTemp%5Cms . . .<p><b>Ask an Expert</b>: John Heintz MD, Cystic Fibrosis http://www.netwellness.org/question.cfm/77261.htm John Heintz MD Wed, 27 Jan 2010 16:01:00 EST http://www.netwellness.org/question.cfm/77261.htm <b>Question</b>: In June 2005 I went to the ER with chest pain and was sent home. I was called later stating I had a small collapse ( non injury ). In October of 2005 my entire lung collapsed and even with a chest tube would not stay up. The doctor did surgery to adhere my lung to the chest wall. <p>Since then, my . . .<p><b>Answer</b>: <meta http-equiv="Content-Type" content="text/html; charset=utf-8"><meta name="ProgId" content="Word.Document"><meta name="Generator" content="Microsoft Word 11"><meta name="Originator" content="Microsoft Word 11"><link rel="File-List" href="file:///C:%5CDOCUME%7E1%5Ckkleman%5CLOCALS%7E1%5CTemp%5Cms . . .<p><b>Ask an Expert</b>: Patricia Joseph MS, MD, Cystic Fibrosis http://www.netwellness.org/question.cfm/76620.htm Patricia Joseph MS, MD Tue, 15 Dec 2009 16:12:00 EST http://www.netwellness.org/question.cfm/76620.htm <b>Question</b>: how do you know when cystic fibrosis is in its advanced stage in an adult, what are some of the things that would occur <p></p> <p></p> <p><b>Answer</b>: <meta http-equiv="Content-Type" content="text/html; charset=utf-8"><meta name="ProgId" content="Word.Document"><meta name="Generator" content="Microsoft Word 11"><meta name="Originator" content="Microsoft Word 11"><link rel="File-List" href="file:///C:%5CDOCUME%7E1%5Ckkleman%5CLOCALS%7E1%5CTemp%5Cms . . .<p><b>Ask an Expert</b>: Patricia Joseph MS, MD, Cystic Fibrosis http://www.netwellness.org/question.cfm/76031.htm Patricia Joseph MS, MD Fri, 13 Nov 2009 23:11:00 EST http://www.netwellness.org/question.cfm/76031.htm <b>Question</b>: I just turned 30 and have had a life of constant sinus infections - now being at least once a month, fatigue to the point where I am taking adderall, very low blood pressure, extreme difficulty with digestive system that got worse with age including painful gas bloating, vomiting, all of which would . . .<p><b>Answer</b>: Your pulmonary symptoms do not sound like CF, but sinuses can be. With intestinal symptoms and sinus symptoms, CF is at least a consideration. Sweat chloride testing (a CF skin test) is only accurately done at a CF certified lab. Ambry Corporation does extensive and complete genetic testing from blo . . .<p><b>Ask an Expert</b>: John Heintz MD, Cystic Fibrosis http://www.netwellness.org/question.cfm/75891.htm John Heintz MD Thu, 05 Nov 2009 22:11:00 EST http://www.netwellness.org/question.cfm/75891.htm <b>Question</b>: Since I was around the age of 9, I have had problems with shortness of breath. It seems like I can`t get rid of respiratory infections, whether it is a sinus infection, bronchitis, or even pneumonia. I am now 20 years old, and about 7 months ago, I started having sharp stomach pains in my left lower . . .<p><b>Answer</b>: I'm sorry to hear about your difficulties. The gold standard for CF diagnosis remains 2 positive sweat chloride tests (a special skin test) done at a CERTIFIED CF TESTING CENTER - this is very important - and/or positive genetic testing done in the setting of symptoms consistent with CF. Both of the . . .<p><b>Ask an Expert</b>: John Heintz MD, Cystic Fibrosis http://www.netwellness.org/question.cfm/75688.htm John Heintz MD Tue, 27 Oct 2009 14:10:00 EST http://www.netwellness.org/question.cfm/75688.htm <b>Question</b>: Why can`t people with CF be together in the same room/place? <p></p> <p> </p> <p><b>Answer</b>: People with CF all carry germs, all of the time, in their airways-both lung and sinuses. However, not all people carry around the same germs. Some people carry more problematic germs (more likely to cause problems to the person with those germs) than others do. Unfortunately, those germs can definit . . .<p><b>Ask an Expert</b>: John Heintz MD, Cystic Fibrosis http://www.netwellness.org/question.cfm/75327.htm John Heintz MD Wed, 07 Oct 2009 20:10:00 EST http://www.netwellness.org/question.cfm/75327.htm