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Thursday, August 17, 2017
Inherited Disorders and Birth Defects
Research being done on myotonic dystrophy
I was wondering if you heard of any trial studies going on to cure Myptonic Dystrophy?
The National Institutes of Health has appointed The University of Rochester Medical Center in Rochester, NY, to manage the National Registry of Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy Patients and Family Members. The purpose of the registry is to enroll and conduct research studies, some of which are aimed at finding cures for the disease. The website is listed below.
Anne Matthews, RN, PhD
Associate Professor of Genetics
School of Medicine
Case Western Reserve University