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Tuesday, July 29, 2014
Inherited Disorders and Birth Defects
Finding a Doctor who Knows about ALPS
I am trying to find a doctor who knows about the ALPS. Please I need help.
I believe you are asking about autoimmune lymphoproliferative syndrome (ALPS) which is a genetic disorder that affects the immune system.
National Institute of Allergy and Infectious Diseases (NIAID) at the National Institutes of Health (NIH) is doing research on ALPS. The website is listed below. You might want to contact one of the nurses listed on the NIAID website; they are both in Bethesda, MD. They will have more information about how to find a doctor who works with people with ALPS. They are:
Susan Price, R.N.
Joie Davis, P.N.P.
Anne Matthews, RN, PhD
Associate Professor of Genetics
School of Medicine
Case Western Reserve University